We are finally out of the hospital! I feel so nervous though, Mark's swelling has continued since we left the hospital. Both eyes are swollen, so much that it is affecting his vision, one ear is swollen, a portion of his leg (around his knee) and now his lips! I can't help but feel on edge about how much the swelling has increased since we left and just pray that it doesn't affect his airway. The tightness he began feeling in his throat has improved a little and we're so thankful for that!!
Although one eye was swollen and the other was trying to catch up, they let him go with the belief that this was just the final stage of the aspirin allergy. The PA said that aspirin allergy is often, feet, hands, eyes....the exact path that it has taken with Mark. He was sent home on the benadryl and steroids that he was taking in the hospital. We're praying for an uneventful night full of rest and good sleep. Over the past 27 days I've spent 21 of them sleeping in a chair or little hospital couch, so I have learned just how much I appreciate the common things like a real bed and pillow!
Tomorrow morning I will be making Mark an appointment with an allergist. Hopefully he will be able to give us some real answers to the success of the aspirin desensitization as well as give us some direction as to what's ahead. The cardiologist team still feels so adamant about keeping him on the aspirin. They aren't being stubborn, they just know that the best protection for his heart is the aspirin. Because of his young age and the huge genetic component of his heart disease, they want to do everything possible to keep him out of a surgery situation as long as possible.....and we fully agree with that! At this point though, we're unsure that aspirin desensitization is going to work for his type of allergy.....We'll be making going to a lot of doctor visits in the next few days and weeks.
Today was most definitely a difficult day! We are so thankful that Mark is out of the hospital and are believing and praying that things will only improve from this point on. Although this hospitalization wasn't "serious" in comparison to the previous visit to Emory, the effects of not treating this problem correctly are massive! I know I've run out of ways to say THANK YOU for your prayers and words of support and encouragement, but they are still sincere and truly from our hearts! I often find myself rereading FB comments from days and even weeks before when I'm feeling stressed or like I've met my limit of what I can tolerate. We're also so thankful for those who brought "treats" to the hospital and meals to our house. The breaks from hospital food kept us sane and the meals, well you really don't know how much that has helped us out!! We're also immensely thankful for the support from our families and for their help with Trenton!
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